|
By Katherine McInerney
Special to the Reporter
Nine special needs adults in Dorchester have
found a world where their disabilities are
invisible and their voices are heard. It's a
three-dimensional, virtual world called Second
Life, where users or "residents" log on to
socialize, connect, and create with other people
around the world.
The group of nine, who all have neurological
diseases such as cerebral palsy and attend the Bay
Cove day-habilitation program at Kit Clark Senior
Services' Codman Square location, are not just
leaving their wheelchairs behind when entering
Second Life. They're shaking the stigma and the
frustrations that accompany their first lives,
where they feel their disabilities define them. Not
only can they walk and talk with ease in Second
Life, they can fly on magic carpets, build islands
and relationships, and communicate in new ways.
Together they make up the avatar known as Wilde
Cunningham, a man they adorned with orange skin and
orange spikes of hair jutting out of his head. They
first discovered Second Life in 2004 with their
former case manager June-Marie Mahay (known in
Second Life as Lilone Sandgrain) at the now-closed
Evergreen Center in Mattapan.
As Mahay discovered the endless possibilities of
her own second life, she said she saw a lot of
potential for people in the center to participate.
"This group has deficits by most people's
interpretations," Mahay said, "but they have been
able to reach out and touch the world."
Micah Johnson of Dorchester makes up one-ninth
of Wilde. Confined to a wheelchair, he finds it
hard to express himself in real life, but
"in-world" (in Second Life), he has a chance to act
out things that are otherwise impossible for him to
do.
"It's a chance to be someone in another world
that you can't be in this world," he said.
The nine members of Wilde Cunningham have severe
physical disabilities but full mental capacities,
though they often have difficulty expressing
themselves. Operating as a single avatar in Second
Life, they come to a group consensus on what to do
and say in-world. They require an aid to help them
use the computer, which was Mahay's role with the
group until she moved to California two years
ago.
Since then, Wilde's multiple controllers have
struggled to stay in-world. Their move to Bay Cove
after the closing of Evergreen Center saw some
"birthing pangs" bringing Second Life into the
program, Mahay said. Now, problems with staff
retention at Bay Cove's day program affects the
center's ability to offer Second Life, Mahay said,
noting that Wilde has been offline for about three
weeks as they look for a new "mascot," to run the
computer and take them in-world.
Nevertheless, Wilde has left its mark on Second
Life and its ability to raise awareness about
cerebral palsy. Second Life is now partnering with
tens of thousands of people with disabilities,
Mahay said, which was the group's initial mission.
"They wanted to get the word out that all people
are the same," Mahay said, "that there's more to
just looking weird or sounding weird or society not
knowing what to do with them."
John Lester, Boston operations director for
Linden Labs, the creator of Second Life, said Wilde
is a celebrity of sorts in the virtual world. They
have inspired others with their story. "They open
people's eyes to how Second Life can be used by all
kinds of people facing challenges in the world,"
Lester said, "how to make them more connected with
the world at large."
Wilde has created an island in Second Life where
they express themselves through writing, buildings,
gardens, and other works of art. Even when they're
not online, people can visit their island and see
what they've left of themselves there.
They write note cards that they share with other
Second Life residents - one that was shared with
Wagner James Au, author of the book "The Making of
Second Life," explains what cerebral palsy is and
goes on to list the following misconceptions about
people who have the disease: "that they are not
intelligent, that they are happy to be ignored,
that they lack humor, that they don't mind the
total dependency, that their common sense, humor,
insights don't surpass yours at times."
Other members of Wilde have written poems,
jokes, or dreams on the note cards. They talk about
their frustrations not being able to communicate
with others or being judged solely on their
appearances. A poem by Mary, who has a facial
deformity and trouble speaking, begins: "I'm
trapped, I'm trapped but so are you
what do
you see when you look at me? Can you tell I have a
soul? Do you see only my body? Do you think I am
less whole?"
A note posted by the Wilde collective discusses
the injustices they have suffered because of their
disabilities. "Most of us, if not all of us, have
had things stolen from us, because we are
disabled," they wrote. "Many of us, if not all of
us have been slapped or abused physically, and
several times all of us have been verbally abused -
a lot! Which hurts by the way!!" Later, the group
writes, "perhaps the greatest pain when our dignity
has been taken, stolen. Our humanity, feelings,
kicked around and abused."
Rep. Edward Markey, chairman of the House
Subcommittee on Telecommunications and the
Internet, led the first congressional hearing ever
to take place in an online virtual world on April
1. Wilde Cunningham was invited to attend the
hearing in Second Life, and was introduced by
Markey as "an inspirational group of individuals"
who are "using their avatar to run, fly, and
communicate with people in a whole new way. This is
a prime example of how virtual worlds can empower
and animate the lives of individuals with
disabilities through the use of broadband
technologies," Markey said.
Second Life has given the nine souls of Wilde a
new chance at life, Mahay said and "when they end
up changing their own lives they end up changing
the lives around them."
Back
to Reporter Home Page
|